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I have ET in both hands. I have had discernible ET for more than 35 years
No pharmaceuticals have helped so far
I also have epilepsy which is in total control and has been since it’s initial diagnosis and medication prescription Gagapentin
My present options are with mechanical intervention which I do not like
I am extremely interested in your medical study with a new drug
I have had AT since I was a baby, my mother and my daughter have also have this. I want to finally find something that helps. I have hand tremors, also tremors in my head and voice legs. At times when the weather is cold my legs lock up and I have very bad internal tremors. I just want help that works please. I have used several types of meds that works some for a short time or not at all, and have side effects that are dangerous to me, like sleep or dazed. I would do trials of are new treatments. I am now 71 years . I live in Hugo,Co. 80821
I have had ET for 30+ years. Mother and brother have it to. Meds don’t help much. I am 61 years old and in great health. I would like to do Jazz trials.
Friends, commenting here will not sign you up for a study. Go to jazzpharma.com, click on science and then on clinical trials. Fill out the form. Based on your zip code they will determine if there is a trial location near you.
I have had ET since I was 30, I am now 72. My dad and grandfather also had it. I am taking clonazepam .05 mg 3 times a day. I can at least have some control with my hands when I eat, there was time I couldn’t even feed myself. I love to create art and teach at the senior center, and teach art to children. I still don’t have a steady hand with it comes to showing how to do intricate designs. I live in Johnson City, TN
You can check the following sites for more information on two of the studies:
http://www.Essential1Study.com
http://www.EveresTstudy.com
Have they completed the choosing of volunteers for this trial or is it still open?
Check their website for more information. https://www.evereststudy.com/