About Us

The mission of the International Essential Tremor Foundation is to provide hope to the essential tremor (ET) community worldwide through awareness, education, support and research.

Founded in 1988 as a 501(c)3 non-profit organization, the International Essential Tremor Foundation (IETF) is guided by an executive board of directors, a medical advisory board, and an executive director with a staff of two. The organization consists of patients, physicians, educators, health care workers, parents, relatives, friends, and volunteers.

The IETF is a non-profit organization with a full-time staff and hundreds of volunteers and advocates around the world promoting research, awareness and support for essential tremor.

The IETF provides funding to researchers working to find the cause of essential tremor, better treatments and a cure.

The IETF spearheaded the creation of a National Essential Tremor Awareness Month in the United States (March), and works every year to help increase awareness among legislators and the general public.

The IETF is a proud member of the American Brain Coalition (ABC), Cures Acceleration Network (CAN), Genetic Alliance, Midwest Neurological Coalition, and many other health policy organizations ensuring ET stays in the forefront of scientific conversation.

The IETF provides free educational information and materials to everyone, to help educate healthcare providers, patients and their families on the latest advancements and options.

ET Forum photo


We are proud to be a member, participant and/or partner of these organizations