Her goal is to find one person every day to educate about essential tremor. She uses the name Shakey Nan, and posts videos on YouTube, TikTok, Facebook and Instagram, not only talking about it, but also showing it first-hand. She said she’s never known a day without ET, and raising awareness has made her less […]

Categories: Podcasts
Posted on June 7, 2022

Navy Veteran Peder Nelson is training for his second Cloudsplitter 100, a 100-mile ultramarathon. His goal is to raise awareness about essential tremor and support for the mission of the International Essential Tremor Foundation. Hear his ET story and learn how exercise helps him emotionally and physically. Follow his story and journey on his Difficult […]

Categories: Podcasts
Posted on April 26, 2022

IETF Executive Director Patrick McCartney visits with Meal Lifter co-founder Anne Royer. Meal Lifter was born out of the need to create a functional eating space for Ann’s mother-in-law who had tremors from Parkinson’s disease. It’s a sturdy platform that holds and elevates a 9-inch plate, decreasing the distance from the plate to the mouth […]

Categories: Podcasts
Posted on March 2, 2022

Learn about Allevx, a neuromodulation wrist device for treating essential tremor, developed by Allevion Therapeutics. IETF Executive Director Patrick McCartney talks with Allevion’s CEO and Chairman Shawn Moaddeb and Board Certified Neurologist Dr. Neal Hermanowicz.

Categories: Podcasts

The Readi-Steadi Anti-Tremor Orthotic Glove System was developed to help patients gain control of their hand tremors. Creator Krista Madere, licensed occupational therapist and certified hand therapist, shares her story about this medical device that, on average, provides a 50 percent reduction in tremor.

Categories: Podcasts
Posted on January 6, 2022

Jazz Pharmaceuticals is investigating a drug that acts to modulate the activity of t-type calcium channels associated with essential tremor. The investigational process and the work of Jazz is explained by staff members Michelle Baladi, senior director of global development, and Margaret Lee, head of neuroscience pharmacology.

Categories: Podcasts

Steadiwear has introduced a second version of its smart glove, the Steadi-Two, developed to stabilize hand tremors. CEO Mark Elias discusses upgrades made to this device and how it works, plus feedback the company has received from the essential tremor community.

Categories: Podcasts

Diagnosed with voice tremor and spasmodic dysphonia in 2019, singer-songwriter Terri Hendrix has come to realize that attitude is everything. She advises aspiring musicians with essential tremor to own the condition. Her management techniques include vocal exercises, medication and sometimes a shot of alcohol. Be sure to listen until the end of the podcast because […]

Categories: Podcasts

Dr. Elan Louis, professor and chair of neurology at UT Southwestern Medical Center in Dallas, discusses the COGNET Study. More than six years ago, this research was started, following hundreds of ET patients to study their cognitive function over a span of time.

Categories: Podcasts
Posted on August 10, 2021

Lord Julian Fellowes, English actor, novelist and screenwriter best known for creating the television series Downton Abbey, has lived with essential tremor for the past 10 years. He is credited for escalating awareness of ET by writing it into the Downton Abbey storyline. In this podcast, he talks about how having ET changed his career.

Categories: Podcasts