Dr. Elan Louis, professor and chair of neurology at UT Southwestern Medical Center in Dallas, discusses the COGNET Study. More than six years ago, this research was started, following hundreds of ET patients to study their cognitive function over a span of time.

Categories: Podcasts
Posted on August 10, 2021

Lord Julian Fellowes, English actor, novelist and screenwriter best known for creating the television series Downton Abbey, has lived with essential tremor for the past 10 years. He is credited for escalating awareness of ET by writing it into the Downton Abbey storyline. In this podcast, he talks about how having ET changed his career.

Categories: Podcasts
Posted on July 12, 2021

If you’re considering Deep Brain Stimulation therapy to help manage your essential tremor, what questions should you be asking? Learn this and more from this conversation with Dr. Binith Cheeran, movement disorders specialist and medical director for neurological therapies at Abbott Labs.  

Categories: Podcasts
Posted on June 7, 2021

Did you know that brain disease affects more people than heart disease and cancer combined? Katie Sale, executive director of the American Brain Coalition, talks about the mission and advocacy work of the ABC, which serves as an umbrella organization for more than 100 brain-related professional organizations and patient advocacy groups, including the IETF.

Categories: Podcasts
Posted on May 10, 2021

Listen to this panel discussion with some of the IETF’s Essential Tremor Support Group leaders. Learn what motivated some of these leaders to start their group, the rewards and challenges of being a leader and how to get one started in your area.

Categories: Podcasts
Posted on April 12, 2021

He took real world technology used in industry and formatted it for human use to calm hand tremors. Hear how Dr. Leo Nguyen, associate professor of mechanical engineering at California State University, used his expertise to create the Tremelo hand-stabilizing device. He is the founder of Five Microns.

Categories: Podcasts
Posted on March 8, 2021

Mark Honeyman went from being an only child to having 7 siblings and 37 nieces and nephews. Adopted at birth, he started a search for his birth parents several years ago to learn where his essential tremor came from. That led him on a journey with many twists and turns, and fascinating stories. He says […]

Categories: Podcasts

Sage 324 is an oral investigational drug which is thought to enhance the activity of GABA receptors in the brain tremor, having the potential to modulate electrical fluctuations and reduce the abnormal movements in essential tremor. Listen to this podcast with Helen Colquhoun , VP of Development with Sage Therapeutics.

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Categories: Podcasts

Learn how a DaTscan can help neurologists understand the cause of a patient’s tremors. Mark Hibberd, global head of medical services and chief medical officer of pharmaceutical diagnostics with GE Healthcare, explains.

Categories: Podcasts

Madison Young talks about her initial essential tremor diagnosis and how she has learned to explain her condition to others. She expresses her gratitude to those who support the IETF’s scholarship program. “I love having the support of the community behind me,” she said.

Categories: Podcasts