Defining the Treatment Gap: What Essential Tremor Patients Want That They Are Not Getting

By Elan D. Louis, Brittany Rohl, and Catherine Rice (the IETF’s former Executive Director) – A six-item patient-centeredness questionnaire was devised to assess the self-perceived needs of essential tremor (ET) patients. Patients with ET identified a broad range of issues that they felt were not addressed in their treatment; indeed, only one in 10 patients reported that they were satisfied with their care. It is hoped that patient-centered approaches will lead to improved models for the care of patients with this common chronic disease.

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