Have You Registered for the ET Virtual Conference?
Learn and connect with others at the IETF’s Essential Tremor Virtual Education Conference. This free event will take place from 9 a.m. to 1 p.m. (CST) Saturday, October 29 online. You do not need to download or install any software to participate. You only need to have access to the internet.
During the conference:
- Medical professionals and researchers in the field of ET will discuss the diagnostic process and the latest treatments and strategies for living with ET.
- Clinicians and medical companies will showcase some of the latest resources for ET treatment and management.
- Attendees will have the chance to chat and share experiences with fellow patients in virtual meeting rooms.
Register to participate at www.essentialtremor.org/virtualconference.
Deadline Approaching for Spring Scholarships
If you are a college student who has essential tremor (ET), you may qualify for a scholarship from the International Essential Tremor Foundation (IETF).
Each semester the IETF awards four $1,000 scholarships to current or college-bound students diagnosed with ET.
The deadline for spring scholarship applications is October 31, 2022.
Winners will be notified in December.
Scholarships are made possible by your donations and funds from the Lois and John Lichliter Estate. To date, the IETF has awarded $63,000 in college scholarships.
2022 Research Grant Announced
The IETF has awarded a $75,000 research grant to the study, “Characterizing the Transcriptomic Landscapes of Essential Tremor (ET).” The principal investigator is Dr. Guy Rouleau, OC, OQ, MD, PhD, FRCPC, FRSC, director and neuro chair of the Department of Neurology and Neurosurgery at McGill University in Montreal, Canada.
The study seeks to understand:
1) the role of different cerebellar (brain) cells in ET
2) the effects that genetic risk factors for ET have on the expression of certain genes in the cerebellum
3) the effects of propranolol on cerebellar cells derived from ET patients
The IETF Research Grant Program was established in 2001 to support and encourage studies addressing the etiology and pathogenesis ET. At that time, up to two $25,000 grants were awarded per year. Recent gifts from generous donors allowed the IETF to revamp the grant program for a more meaningful and long-term impact. An investment account has been set up to grow the funds allocated for research so grants can be provided for many years to come.
The IETF now sets the focus of studies on areas where more data is needed. Promising studies have the opportunity to receive up to three years of funding with a potential grant amount of $150,000 for the first year.
To date, the IETF has dedicated more than $975,000 to ET research.
A Conversation with ET Advocate Shakey Nan
She hasn’t known a day without essential tremor, but it took her nearly 50 years to speak out about it. And now that she has, her life has changed.
Nichole Wilton, who calls herself Shakey Nan, has developed a huge following on social media for her weekly conversations and educational videos about essential tremor. She’s demonstrated craft projects, how she paints a room – and her fingernails! She’s cut blocks of cheese and carried glasses and cups – all to show there’s nothing she can’t do, and to encourage others. Her TikTok videos alone have garnered her 600,000 views. She even streamed her wedding last year.
Learn more about her story in our latest Talking Essential Tremor podcast, “A Conversation with ET Advocate Shakey Nan.”
Nichole wants people to see her shake and to ask her about it so she can educate them. Her goal is to educate just one person every single day.