Tremor Gram – September 2021

ET Research Grant Process Evaluated, Revamped

Gifts from generous donors in 2021 have provided the IETF with the opportunity to revamp its 20-year-old research grant program for a more meaningful and long-term impact.

image of research in the lab

A research grant committee was formed earlier this year to review and refine the grant process. The committee’s new plan was approved by the IETF Board of Directors this summer. It changes the application process and directs the ET research goals. Now, instead of accepting open applications for research grants, the IETF is following a Request for Applications (RFA) process. RFAs are typically one-time solicitations for grant applications addressing a defined research topic. Defining the research topic area sets the focus of studies on areas where more data is needed. The IETF’s defined areas are studies achieving one or more of the following goals:

1. A better understanding of the underlying pathophysiology of ET, including independent validation of previous findings.
2. A better understanding of the etiology of ET
3. Development or further validation of animal models of ET
4. Other approaches furthering the understanding of ET, which in turn would lead to enhanced treatment options for patients

Researchers and clinicians with ideas for studies meeting one or more of these goals must submit a letter of intent outlining specific aims of their study, timeline, and more. A grant review committee will then review all letters of intent and invite those with promise to submit a full proposal. Promising studies have the potential to receive up to three years of funding with a potential initial grant amount of $150,000 for the first year.

“With this new process, we can direct the focus of our research grants around areas that will yield some solid scientific results to help us better understand essential tremor,” said Dr. Holly Shill, chair of the IETF Medical Advisory Board.

A deadline of November 30, 2021 has been set for all letters of intent. Invitations will be sent to promising applications in January 2022 asking for full proposals. The grant recipient(s) will be announced in June 2022. Learn more on the IETF website.

Download Your Free Medical Alert Card

The IETF has made it easier and faster for you to receive an Essential Tremor Medical Alert Card. We have created an online template where you can personalize your card and print it right from your home.

The Essential Tremor Medical Alert Card states, “I have a condition called Essential Tremor” and explains what ET is. It includes a section where you can list an emergency contact, your doctor’s name and any allergies or other medical conditions. 

The cards are free to anyone in the ET community. You can carry them in your wallet or billfold in the event of an emergency or to show to others who might have questions about your condition.

Click here to see the template and print yours today!

Scholarships Available for Students with ET

Are you a college student who has essential tremor? Are you the parent or grandparent of a college student who has essential tremor?

Check out the scholarship opportunity the IETF has for college students with ET. Each semester, the International Essential Tremor Foundation awards four scholarships to current or college-bound students who have been diagnosed with essential tremor. The $1,000 scholarships help support these students with their higher education goals. The deadline for spring scholarship applications is October 31, 2021.

Scholarships are awarded based on academic success, community service, leadership skills and an essay submission. Applications and more details are available on the IETF website.

Winners of the scholarships will be announced in December. 

Categories: Tremor Gram

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