Have You Registered for the ET Virtual Conference?
More than 1,100 people have registered for the IETF’s first ever Essential Tremor Virtual Education Conference. This free event will take place from 9 a.m. to 1 p.m. (CST) Saturday, October 29 online.
The conference will bring together medical professionals, scientists, researchers and other ET experts to discuss the latest treatments and strategies for living with the condition. Participants may also connect with others in chat rooms during the event and learn about the latest resources for ET treatment and management from participating clinicians and medical companies.
Main speakers and sessions will include:
- ET Research Update
Dr. Holly Shill, Director, Lonnie and Muhammad Ali Movement Disorder Center & Chair of the IETF Medical Advisory Board
- Diagnostic and Treatment Options for ET
Dr. Stuart Isaacson, Director, Parkinson’s Disease and Movement Disorders Center of Boca Raton, FL, & IETF Medical Advisory Board member
- Coping Techniques for ET
Kelli Reiling Ott, OTD, OTR/L, MSC, Program Manager, Evidence Based Practice, Children’s Mercy Hospital
You do not need to download or install any software to participate. You only need to have access to the internet.
Register to participate at www.essentialtremor.org/virtualconference.
Clinical Trials Need Participants
Without clinical trial participants, many medications and devices on the market today would not exist. A clinical trial is a research study conducted in humans for the purpose of answering questions about new therapies, diagnostic treatments, vaccines or new ways to use existing treatments. They help to determine the safety and effectiveness of these therapies and treatments.
In the essential tremor study realm, the IETF works with a number of pharmaceutical and research companies invested in developing new treatments to manage ET. We post their research studies on our website and often send informational emails to individuals who live in the areas where the studies are taking place.
We encourage everyone to browse these clinical trials on a regular basis to learn more about getting involved.
Another great resource for clinical trials is www.clinicaltrials.gov. Just key in “essential tremor” under “condition or disease” to find those focused on ET. Help us keep research moving forward!
Apply for a College Scholarship from the IETF
Time is running out to apply for a spring scholarship from the International Essential Tremor Foundation (IETF). If you are a college student who has essential tremor (ET), you may qualify.
Each semester the IETF awards four $1,000 scholarships to current or college-bound students diagnosed with ET.
Scholarships are awarded based on academic success, community service, leadership skills and an essay submission. Applications and more details are available on the IETF website.
The deadline for spring scholarship applications is October 31, 2022.
Scholarships are made possible by your donations and funds from the Lois and John Lichliter Estate.
I look forward to this as my condition has b/c a problem that now effevcts tremors throughout my body. Am very concerned about this it hampers such things as driving. I live alone;have friends who help but I don’t like to ask or depend on them too much.
Don’t quuite understand what to comment here. Sorry.
Reply?
Thank you for connecting with us. You are certainly not alone in your struggles with essential tremor. More than 10 million people in the U.S. alone are impacted by it. If you are looking for ways to connect with others who have ET, you can try our Essential Tremor Awareness Group on Facebook. https://www.facebook.com/groups/5884699022/. We also have more than 70 support groups that meet in person or virtually around the world. A list is on our website. https://essentialtremor.org/resources/living-with-et/support-groups/.