Tremor Gram – October 2021

New Virtual Education Event: Tremors, Quakes and Shakes of the Voice

If you are impacted by vocal tremor, tune into our newest virtual education event, “Tremors, Quakes and Shakes of the Voice: Understanding and Treating Vocal Tremor and Spasmodic Dysphonia.”

In explaining these conditions, Dr. Michael Johns, director of the voice center at the University of Southern California, gives a detailed explanation of how the voice works, even sharing a video of the muscles of the vocal chords. Diagnosis and treatment options are covered, including botox injections.

Changes to the voice that do not resolve themselves within about four weeks, should be checked by a physician, according to Dr. Johns.

Dr. Johns serves on the IETF Medical Advisory Board

Tracking Cognitive Changes in People with ET

Talking-Essential-Tremor-Podcast-Art-Square

More than six years, Dr. Elan Louis launched the COGNET Study. His goal was to study the cognitive function of patients with essential tremor by following them over a period of years. Dr. Louis is professor and chair of neurology at the University of Texas (UT) Southwestern Medical Center in Dallas.

In our latest Talking Essential Tremor podcast, “Tracking Cognitive Changes in People with ET,” he discusses this study, which has involved hundreds of patients to date. He reveals the types of cognitive changes seen in people with ET and how these changes evolve over time. The study is ongoing and each participant has agreed to be a brain donor so the cognitive changes throughout their lives can be documented.

After listening to the podcast, you can read more about the study in this article published by the National Institutes of Health National Library of Medicine. 

Scholarship Applications Due October 31

The deadline is approaching for applications for spring scholarships.

graduation photo

If you are a current or incoming college student with essential tremor, you are encouraged to apply for one of four $1,000 scholarship awards. Undergraduate, graduate and PhD students may apply.

Application criteria includes:

·        Student achievement

·        Leadership skills and community service

·        Essay submission

The scholarships can be used for supplies, books or tuition at licensed, accredited institutions of higher education (including trade schools).

Scholarship criteria and the official application are posted on the IETF website.

Be sure to turn in your applications by Oct. 31, 2021. 

Categories: Tremor Gram

8 thoughts on “Tremor Gram – October 2021

  1. My husband has had ET since he was in his late teens. He had dbs surgery on both sides in 2012. The results were great at first but the tremors have increased over time.

    He wants to donate his brain for research and has put this into his Will. How do we actually go about making that happen?

  2. I found the speech on Vocal Tremor very interesting. I would like to know where in the Michigan area do they advise I see a specialist in this field. I had botox in the past and my last treatment resulted in swallowing problems. The doctor has retired to administered the injections. I don’t know who to see?

    1. I looked at our listing of movement disorders specialists on our website and saw a few near you who offer botox:

      Dr Bisena Bulica at Henry Ford Hospital in Sterling Heights, 248.661.6466
      Dr Neepa Patel at Henry Ford in West Bloomfield, 248.325.2452
      Dr Adam Kuhlman, Beaumont Neuroscience Center in Royal Oak, 855.863.8761

    1. There have been a wide array of research studies conducted on essential tremor and many are in the planning. So far no cure has been found. However, there are a number of treatment options including medications, surgical options and management techniques to help people manage their ET. Here is a link to the research page on our website where you can find past and current studies plus much more. https://essentialtremor.org/what-we-do/research/. Here is a link to our treatment options page. https://essentialtremor.org/resources/living-with-et/treatments/

    2. I had a botched DBS surgery 4 years ago and things are much worse now.
      Beware! I am seeing a 3rd neurosurgeon now – waiting for the 2nd visit.

  3. I was getting vocal tremors, which were getting worse after my fist DBS surgery in 2013 (for my left hand & arm.) I needed surgery for my right side by 2016. My surgeon said that the second surgery could maybe fix my voice tremor, too, but it was a 50/50 chance and that my voice would change. My voice tremors DID go away and I’m thrilled with that, but my voice got a bit deeper, very raspy when I’m tired and I can’t sing like I did. It is worth it to me to speak clearly, though. I am fortunate!

Leave a Reply

Your email address will not be published. Required fields are marked *