Tremor Gram – November 2022

Watch Sessions from our ET Virtual Conference

Thank you to everyone who participated in our first Essential Tremor Virtual Education Conference. We had more than 1,800 registrants for our morning of educational programming. If you missed it, or want to rewatch one of the sessions, they are available on the conference website

ET Virtual Ed Conference Auditorium

The conference website will remain open until November 29, 2022. Login with the email you used to register for the event to watch the main sessions. If you did not register, you can still register and then login. The main sessions are:

  • Essential Tremor Research Update by Dr. Holly Shill, with the Lonnie and Muhammad Ali Movement Disorder Center at the Barrow Neurological Institute, Phoenix
  • Diagnostic and Treatment Options for Essential Tremor by Dr. Stuart Isaacson, director of the Parkinson’s Disease and Movement Disorders Center of Boca Raton, FL
  • Coping with the Physical and Emotional Effects of Essential Tremor by Kelli Reiling Ott, OTD, OTR/L, program manager of evidence-based practice at Children’s Mercy Hospital, Kansas City, MO
  • Roundtable Discussions about ongoing ET clinical trials featuring representatives from Sage Therapeutics, Paxis Precision Medicines and Jazz Pharmaceuticals.

Just login, enter the lobby and click on “Auditorium” at the top to access all the sessions. https://ietfvirtualconference.vfairs.com/

A Look at the New Book ‘Tremors’

Much has happened in the field of tremors in the past 10+ years and a newly published book, “Tremors” brings it all together.

Talking-Essential-Tremor-Podcast-Art-Square

In our latest Talking Essential Tremor podcast “A Look at the New Book ‘Tremors,’” Dr. Claudia Testa talks about this new book, which she co-edited with Dr. Dietrich Haubenberger. It shares recent developments in understanding tremor pathology and genetics, as well as the clinical findings in treatment models. It covers the history and background of tremor, plus the family of tremors. One chapter is dedicated to essential tremor.

Dr. Testa said the book was conceived as a way to pull together updated information in the field of tremors, because the last book published on tremors was in the 1990s.

The book is targeted toward professionals involved in research as well as those in a clinical setting. If you are interested in purchasing it, learn more online. 

Dr. Testa is division chief of Precision Medicine and Neurogenetics at the University of North Carolina School of Medicine. She also serves on the IETF Medical Advisory Board.

Support Students with ET This GivingTuesday

Tuesday, November 29 is GivingTuesday, the international day of giving. Its goal is to build a world where generosity is at the heart of the society, unlocking dignity, opportunity and equity around the world.

At the International Essential Tremor Foundation, we want to focus on the future by zeroing in on young people who have the power to change the world for people with essential tremor (ET). That’s why all GivingTuesday donations will be dedicated to the IETF’s Catherine Rice Scholarship Fund.

This fund supports scholarships for incoming and current college students diagnosed with ET. These scholarships not only provide monetary support for these students during an important time in their lives, but they also allow them to feel the support of a community who understands their ET. In return, these students often give voice to ET and speak out about their condition. Some hope to become scientists or doctors, or to work in a field where they can help others, just as they have been helped. 

Please consider a donation to this worthwhile program, that shows young people we believe in them!

Boston Scientific Virtual Education Event

If you want to learn more about deep brain stimulation (DBS) therapy, tune into our newest ET Virtual Education Event, “Therapy without Compromise.”

ET Virtual Education Event art

Presented by Dr. Britt Stone, assistant professor of neurology in the division of movement disorders at Vanderbilt Medical Center, she debunks myths about DBS and discusses when patients should consider DBS as an effective treatment option for essential tremor.

She also discusses image guided programming options offered by Boston Scientific which offer neurosurgeons precision to see, shape and steer the stimulation as the leads are implanted into the brain. This technology also offers the flexibility to manage patients’ evolving needs in the future.

This video is just one of many ET Virtual Education Events available on our website.

Categories: Tremor Gram

8 thoughts on “Tremor Gram – November 2022

  1. I am now 84 years old. MY ET has been a mystery to me since early childhood, and it has during all this time it has steadily invaded every corner of my life. It has its own tormentng existence and that makes
    the tremors such a private thing. I cannot explain it to family, friends,
    or even to doctors. But I would like to talk to others who have ET or
    others who share a closeness with others who live with others who
    care for ET “sufferers”. Perhaps you can help.

    1. Support is so important. It’s nice to connect with others who are experiencing the same things you are. We have a number of support groups around the country. You can check our list online to see if there is one near you. Some also meet via Zoom so you don’t have to live in the area to attend one. https://essentialtremor.org/resources/living-with-et/support-groups/. We also have an online support group through Facebook. I’m not sure if you are on the Facebook platform, but if you are, you might want to check this out. https://www.facebook.com/groups/5884699022/

  2. I am trying to gain access to the conference since I was unable to attend.
    I have registered, signed in and saw the approximately 2 minute intro that says lets start with the first session of the day.
    Then nothing happens. How can I watch this event?

    1. Sorry you are having trouble.

      After you see Patrick finish his welcome. Click on “Click Here” to enter the conference lobby.
      Once you are in the lobby, where you will see people walking around and several sponsor signs, go to the top of the page and click on “Auditorium.”
      Once in the auditorium, you will see a big screen with the IETF logo and the name of the conference. Click on “click here to access sessions” and you will see the agenda. There are several “orange” buttons that say “play” you can click on to hear the sessions.

      Please let me know if you are still having trouble.

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