Watch Sessions from our ET Virtual Conference
Thank you to everyone who participated in our first Essential Tremor Virtual Education Conference. We had more than 1,800 registrants for our morning of educational programming. If you missed it, or want to rewatch one of the sessions, they are available on the conference website.
The conference website will remain open until November 29, 2022. Login with the email you used to register for the event to watch the main sessions. If you did not register, you can still register and then login. The main sessions are:
- Essential Tremor Research Update by Dr. Holly Shill, with the Lonnie and Muhammad Ali Movement Disorder Center at the Barrow Neurological Institute, Phoenix
- Diagnostic and Treatment Options for Essential Tremor by Dr. Stuart Isaacson, director of the Parkinson’s Disease and Movement Disorders Center of Boca Raton, FL
- Coping with the Physical and Emotional Effects of Essential Tremor by Kelli Reiling Ott, OTD, OTR/L, program manager of evidence-based practice at Children’s Mercy Hospital, Kansas City, MO
- Roundtable Discussions about ongoing ET clinical trials featuring representatives from Sage Therapeutics, Paxis Precision Medicines and Jazz Pharmaceuticals.
Just login, enter the lobby and click on “Auditorium” at the top to access all the sessions. https://ietfvirtualconference.vfairs.com/
A Look at the New Book ‘Tremors’
Much has happened in the field of tremors in the past 10+ years and a newly published book, “Tremors” brings it all together.
In our latest Talking Essential Tremor podcast “A Look at the New Book ‘Tremors,’” Dr. Claudia Testa talks about this new book, which she co-edited with Dr. Dietrich Haubenberger. It shares recent developments in understanding tremor pathology and genetics, as well as the clinical findings in treatment models. It covers the history and background of tremor, plus the family of tremors. One chapter is dedicated to essential tremor.
Dr. Testa said the book was conceived as a way to pull together updated information in the field of tremors, because the last book published on tremors was in the 1990s.
The book is targeted toward professionals involved in research as well as those in a clinical setting. If you are interested in purchasing it, learn more online.
Dr. Testa is division chief of Precision Medicine and Neurogenetics at the University of North Carolina School of Medicine. She also serves on the IETF Medical Advisory Board.
Support Students with ET This GivingTuesday
Tuesday, November 29 is GivingTuesday, the international day of giving. Its goal is to build a world where generosity is at the heart of the society, unlocking dignity, opportunity and equity around the world.
At the International Essential Tremor Foundation, we want to focus on the future by zeroing in on young people who have the power to change the world for people with essential tremor (ET). That’s why all GivingTuesday donations will be dedicated to the IETF’s Catherine Rice Scholarship Fund.
This fund supports scholarships for incoming and current college students diagnosed with ET. These scholarships not only provide monetary support for these students during an important time in their lives, but they also allow them to feel the support of a community who understands their ET. In return, these students often give voice to ET and speak out about their condition. Some hope to become scientists or doctors, or to work in a field where they can help others, just as they have been helped.
Please consider a donation to this worthwhile program, that shows young people we believe in them!
Boston Scientific Virtual Education Event
If you want to learn more about deep brain stimulation (DBS) therapy, tune into our newest ET Virtual Education Event, “Therapy without Compromise.”
Presented by Dr. Britt Stone, assistant professor of neurology in the division of movement disorders at Vanderbilt Medical Center, she debunks myths about DBS and discusses when patients should consider DBS as an effective treatment option for essential tremor.
She also discusses image guided programming options offered by Boston Scientific which offer neurosurgeons precision to see, shape and steer the stimulation as the leads are implanted into the brain. This technology also offers the flexibility to manage patients’ evolving needs in the future.
This video is just one of many ET Virtual Education Events available on our website.