Tremor Gram – November 2021

Your GivingTuesday Donations Support Scholarships for Students with ET

Giving hope and support to young people with essential tremor (ET) is what the IETF’s Catherine Rice Scholarship Fund is about. Once again this year on GivingTuesday, the world-wide day of giving, the IETF will be dedicating all donations to this important fund.

Since 2011, more than $55,000 in scholarships has been awarded to college students with ET all over the world. These students have thrived and expressed their immense gratitude for not only the monetary support, but also the emotional investment in them.

2015 scholarship recipient Tyler Criswell is now in medical school at the University of Alabama at Birmingham.

“Your kind donations created the scholarship that inspired me to push forward at a critical and impressionable time in my life,” he said.

GivingTuesday falls on November 30 this year. Watch for a special email from us that day with an opportunity to get involved in this special initiative. Or if you want to give in advance, our site is open for donations.

Musician Shares Her Journey with Voice Tremor in Our Latest Podcast

Talking-Essential-Tremor-Podcast-Art-Square

Well into her thriving career as a singer/songwriter, Terri Hendrix, Martindale, TX, began experiencing some changes in her voice. In 2020, she was diagnosed with essential voice tremor and spasmodic dysphonia. After a failed treatment with botox, she became her own advocate and spent countless hours researching techniques and treatments.

Today she is vigilant about vocal exercises which include reading out loud, humming and using an oovo vocal straw. And sometimes a shot of whiskey or vodka helps.

Terri shares her story in our latest Talking Essential Tremor podcast, “Talking About Voice Tremor with Musician Terri Hendrix.”

She advises others with vocal tremor to “own the condition.”

“Realize that you are not going to have the voice you once had,” she said. “But that doesn’t mean you’re not going to have a voice. It’s important for more musicians with disabilities to get out there and create music.”

Terri just released her latest album on Sept. 3 titled, “Pilgrim’s Progress” which is filled with cover songs made famous by artists including Kris Kristofferson, Dolly Parton, John Prine and Jerry Jeff Walker. Learn more about Terri on her website.

Recognizing and Supporting Our Caregivers

Celebrated every November, National Family Caregivers Month (NFCM) is a time to recognize and honor family caregivers across the country. It offers an opportunity to raise awareness of caregiving issues, educate communities, and increase support for caregivers.

Many people in our essential tremor (ET) community are supported by a loving caregiver, who assists them with daily tasks and provides emotional support during difficult times. Dave Sevart is one of those caregivers. He supports his wife, Rita, who has had ET since before they were married, more than 40 years ago. He said, “it takes both us of to handle life with essential tremor” and offers some of the ways the two of them share coping skills in this insightful blog.

If you are a caregiver supporting a family member, or even a neighbor or friend, thank you! While you are caring for others, it is important that you also take care of yourself. Here are some tips for caregivers from the Caregiver Action Network:

  1. Seek support from other caregivers. You are not alone!
  2. Take care of your own health so that you can be strong enough to take care of your loved one.
  3. Accept offers of help and suggest specific things people can do to help you.
  4. Learn how to communicate effectively with doctors.
  5. Caregiving is hard work so take respite breaks often.
  6. Watch out for signs of depression and don’t delay getting professional help when you need it.
  7. Be open to new technologies that can help you care for your loved one.
  8. Organize medical information so it’s up to date and easy to find.
  9. Make sure legal documents are in order.
  10. Give yourself credit for doing the best you can in one of the toughest jobs there is!
Categories: Tremor Gram

One thought on “Tremor Gram – November 2021

  1. Thank you for this information regarding vocal tremor which I have had for 8 yrs. Recently developed into mandibular tremors where my teeth chatter throughout the day and night. I’m interested in learning how others cope with this and any treatments or prescriptions they may use or any scientific breakthroughs I’m current treatments

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