Tremor Gram – November 2020

Learn About Focused Ultrasound in Our New Podcast

We’ve released our third podcast in our “Talking Essential Tremor” podcast series. The topic: focused ultrasound.

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Focused ultrasound is a surgical option for ET. It uses sound waves to treat tissue within the VIM nucleus of the brain to stop tremor.

In this recording, IETF Executive Director Patrick McCartney talks with Dr. Arjun Desai, chief strategy and innovation officer with Insightec, a leader in this incisionless technology. The two discuss the history of focused ultrasound and what patients can expect during the surgery. For example, Dr. Desai said patients are awake and are “active participants” during the procedure.

“You’re actually able, in real time, to watch, as the tremor evaporates when the energy pulses the brain,” he said.

Living with Essential Tremor

The day-to-day challenges of living with essential tremor can be draining – physically and emotionally. Part of the mission of the IETF is to provide hope and support for people impacted by ET. We have a special section on our website dedicated to living with ET. If you haven’t seen it, take a look. It includes:

Treatments: See a list of current treatment options, including surgical procedures and medications.

people sitting in circle laughing

Support Groups: Browse a list of more than 70 ET support group worldwide, that can connect you with people like you who are impacted by ET.

Coping Tips and Devices: Take a look at our list of assistive devices, therapies and coping techniques suggested by medical professionals and others. If there are coping tips or devices you use which aren’t listed here, let us know so we can check them out and share them with others.

Find an ET Specialist: This searchable database includes more than 550 neurologists from all over the country who specialize in movement disorders.  

Support Students This GivingTuesday

Mark your calendars to take part in the IETF’s 2020 GivingTuesday Campaign on December 1.

GivingTuesday is a world-wide day of giving. The goal is to encourage people to come together to do good in their communities and the world.

For the past several years, the IETF has celebrated students with essential tremor on GivingTuesday by dedicating all donations that day to the Catherine Rice Scholarship Fund (named in honor of former IETF Executive Director Catherine Rice).

Watch for a special podcast we’ll be sharing that day which highlights one of our scholarship recipients. It will allow you to hear, in her own words, how impactful these scholarships are.

If you want to give in advance, our site is open for donations. 

Categories: Tremor Gram

9 thoughts on “Tremor Gram – November 2020

    1. We recommend you gather all the information you can and then visit with your doctor about it. He/she has probably heard of it, but it’s good to be prepared when you talk with him/her about it. Insightec has detailed information on their website which should help you. https://usa.essential-tremor.com/

  1. I have been living with ET for over 20 years & simply have not been able to make the “leap” to this procedure. I’m 83, in good health and not as bad off as many…. I suppose that is my reluctance! I very much appreciate being on this mailing list. Many thanks, Rick Webber

  2. Thank you for listing all the medications, treatments and assistive devices in one place. Now I know where to go to find them! I specifically requested this in the last survey so I really feel heard, and I so appreciate that! 40 years with ET and counting…

    1. We have a number of physicians listed in our “Find a Physician” database on our website, https://www.essentialtremor.org. I pulled some of them for you. Here are a few of them:

      NYC Movement Disorder Specialists

      Susan Bressman, MD
      Beth Israel Medical Center
      Phillips Ambulatory Care Center
      10 Union Square E Rm 5J
      New York, NY, 10003-3314
      United States
      Phone:
      212-844-8711

      Alessandro DiRocco, MD
      NYU Langone Parkinson & Movement Disorder Center
      240 E 38th St Ste 20
      New York, NY, 10016-2708
      United States
      Phone:
      212-263-4838

      Stanley Fahn, MD
      Neurological Institute
      710 W 168th St
      New York, NY, 10032-2699
      United States
      Phone:
      212/305-5277

      Blair Ford, MD
      Neurological Institute
      710 W 168th St Ste 350
      New York, NY, 10032-2699
      United States
      Phone:
      212-305-5537

      Seymour Gendelman, MD
      Mt Sinai Med Center
      Dept of Neurology
      5 E 98th St 7th Fl
      New York, NY, 10029-6501
      United States
      Phone:
      212-241-8172

      Rebecca Gilbert, MD, PhD
      NYU Langone Parkinson & Movement Disorder Center
      240 E 38th St #20
      New York, NY, 10016-2708
      United States
      Phone:
      212-263-4838

      Claire Henchcliffe, MD
      Weil Medical School of Cornell Univ
      428 E 72nd St Ofc 400
      New York, NY, 10021-4635
      United States
      Phone:
      212-746-2584

      Joohi Jimenez-Shahed, MD
      Mount Sinai West
      1000 10th Ave Suite 10C
      New York, NY, 10019
      United States
      Phone:
      212-523-8335

      Un Jung Kang, MD
      The Neurological Institute of New York
      Columbia University Medical Center
      710 W 168th St
      New York, NY, 10032-3726
      United States
      Phone:
      212-305-1303

      Michael Pourfar, MD
      Center for Neuromodulation
      530 1st Ave, Skirball 8S
      Silverstein Elevators
      New York, NY, 10016-6402
      United States
      Phone:
      212-263-2607

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