Tremor Gram – May 2020

Posted on May 7, 2020

IETF Launches New Mobile-Friendly Website

After more than a year of planning, the IETF launched a new website on April 30. The web address remains the same: www.essentialtremor.org.

new website screen shot

One of the best features of the updated site is it is mobile-responsive, which means viewing and interaction is easy on a mobile phone or tablet. The site has a new, sleek design and faster loading pages. In the past year, the IETF has seen a 64% increase in traffic to its website, with nearly 60% of people accessing it from mobile devices. With the increase in traffic, the IETF Board and staff set a goal to upgrade the site to better meet the needs of patients and others in the essential tremor community. The IETF website was created in 1999 and last updated in 2013.

“Our website traffic continues to grow each year. It is seen as a reliable and trusted source of information and support for people impacted by essential tremor,” said Patrick McCartney, IETF Executive Director. “We were pleased to be able to enhance the site so it is easier to navigate while still offering a wide variety of content.”

Let us know what you think about the new website! Send your comments to tammy@essentialtremor.org.

Donate in Honor of a Loved One

Memorial Day is a time to honor the men and women who died while serving our country. Over the years, it also has become a day of remembrance of loved ones who have passed. This year Memorial Day falls on May 25.

Memorial Donation Tulips

As the holiday approaches, consider honoring a loved one with a memorial contribution to the IETF. There is no set minimum contribution and all memorials are posted on the Memorial Wall of the IETF website and in Tremor Talk magazine.

Memorial contributions aren’t just limited to the Memorial Day time-frame. The IETF sees contributions all year long, to recognize loved ones during other holidays, on birthdays and special anniversaries.

As with all donations to the IETF, memorial donations are tax-deductible.

Coronavirus Pandemic Causes Postponement of Education Forums

The March and June Essential Tremor Education Forums planned for 2020 were postponed due to the Coronavirus pandemic. The events were set to take place in Chicago and New York City. Both of these events have been rescheduled for the same timeframe in 2021.

It’s uncertain what the summer and fall months will bring with the pandemic. With this in mind, the IETF has TENTATIVELY scheduled two fall ET Education Forums:

Patrick Presenting at ET Ed Forum
  • Saturday, September 26 in Cincinnati, OH
  • Saturday, November 14 in Phoenix, AZ

All ET Education Forums are free and open to anyone impacted by essential tremor. The events feature an update on diagnosis and treatment options from a local neurologist, coping and management tips from an occupational therapist, and resources and materials from national and international medical, technology and bio-tech companies who specialize in therapy and surgical treatment options.

Watch our website for more details on the status of these events.

Categories: Tremor Gram

3 thoughts on “Tremor Gram – May 2020

  1. I was recently diagnosed as having Parkinson’s disease after I have had ET for 10 yrs.; one of the 20% whose ET progressed to Parkinsons. This was by my neurologist, Dr. Max Benzequen who originally diagnosed my ET. I would like information on this, I am completely surprised, as I did not even realize it as a possibllity. Any info would be greatly appreciated.

    1. This is a topic of much debate. Some believe that one can have both disorders and it is unrelated, while others believe there could be a relationship. The fact that there are over 10x as many people with ET than PD suggests it is not related in the majority of patients. The “Tremor and Other Hyperkinetic Movements Journal” includes a study exploring the relationship between the two conditions. You might find it helpful. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6329774/

  2. Buenas tardes en mi caso los neurólogos me diagnostican temblor esencial pero el neurocirujano considera que tengo una malformación de chiari tipo II por presentar un descenso de amígdala cerebelosa de 5mm, también presento después de diez años de diagnosticado el primero, presento una escoliosis y problemas a nivel cervical así como he presentado una meliosis (inflamación medula espinal) presento imposibilidad de permanecer parada o sentada por más de una hora dolor cervical lumbalgia

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