Tremor Gram – June 2024

Posted on June 10, 2024

Learn about Essential Tremor Medications

Learn about common medications for essential tremor (ET) in our newest ET Virtual Education Event, “Essential Tremor Medications.”

The presentation is by Dr. Pravin Khemani, medical director of the movement disorders program at the Swedish Neuroscience Institute in Seattle. He talks about the various medications prescribed to ET patients, noting common side effects as well as research under way into new ET medications. He also discusses ET diagnosis and other tremor conditions.

Dr. Khemani is a member of the IETF Medical Advisory Board.

The IETF has recorded more than a dozen ET Virtual Education Events around various topics related to essential tremor. You can view them online.

New ET Support Groups in 2024

Several new Essential Tremor (ET) Support Groups have been established this year. ET Support Groups bring people with ET together in a caring environment to share stories, learn about management techniques and connect as a small ET community. Our newest groups are:

Calgary, Canada ET Support Group, led by Brent Warren

Cedar Hill, TX ET Support Group, led by Ericka al-Uqdah

Lexington, SC ET Support Group, led by Kari Risley

Edison, NJ ET Support Group (moved from West Orange), led by Jacqueline Cristini

Meeting times and places vary by group. We list upcoming meetings for many of our ET Support Groups online.  

See a complete list of all ET Support Groups on our website. If you don’t see one near you, consider starting one. The IETF provides training manuals and support. Express your interest by completing our online application

Help Find a Cure for Essential Tremor

It’s easy to feel frustrated because of essential tremor. Not being able to control some movements and feeling like there’s just not much that can be done about it…well, it gets old.

But there is something that can be done. Making plans now to donate your brain when the time comes will help neuroscience researchers one day prevent and cure this disorder.

Brain Donor Project Logo

Brain donation is critically needed by researchers trying to solve the mystery of many disorders including essential tremor. High-quality, well-characterized donated brain tissue may be the most valuable resource when it comes to understanding the behaviors of the brain that lead to these devastating symptoms.

The first step is relatively simple: visit braindonorproject.org and click on the box in the upper right-hand corner that’s labelled “brain pre-registration”. Then complete the brief on-line form and hit submit. It’s critical to talk with family about this decision, as they’ll notify the brain bank when the time comes.

Please consider this decision as important as any other regarding your end-of-life plans.

Sign Up for a Clinical Trial

If you want to make a difference in the search for better treatments for essential tremor (ET), consider participating in a clinical trial. On the IETF website, we keep an ongoing list of clinical trials recruiting participants.

Here are some of the most recent ones:

  • Praxis Precision Medicines Essential3 At-Home Phase 3 Research Study in Essential Tremor. The Essential3 study is an at-home research study evaluating an investigational drug, to see if it may improve your ability to complete everyday tasks, such as eating, drinking and dressing. The Essential3 study has been designed so that you may participate from the comfort of your own home. There is no travel or trips to the doctor’s office required. If you would like to learn more about this study and see if you qualify, visit www.essential3study.com.
  • The University of Texas Essential Vocal Tremor Treatment Study. Researchers in the Voice Lab at The University of Texas at Austin invite individuals with essential tremor to participate in a study of voice. The goal of this study is to develop a therapy that improves vocal control in speakers with tremor. Participants will complete hearing tests, cognitive tests, and voice recordings while they perform different speaking tasks. Participants will also receive 12 virtual voice therapy sessions. Nasolaryngoscopy will be performed.  Participation requires attending up to two in-person sessions in the UT Voice Lab in Austin, TX. For more information contact the UT Voice Lab, (512) 232-4428, or email voicelab@austin.utexas.edu.
Categories: Tremor Gram

One thought on “Tremor Gram – June 2024

  1. I have applied to several trials, but always turned down because I had DBS. This is a shame since I was born with ET and hereditary from both sides of my family.

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