Tremor Gram – June 2020

Posted on June 4, 2020

Give Us Feedback About Future ET Education Events

The IETF’s first two ET Education Forums of 2020 were postponed due to the COVID-19 pandemic. Like many businesses around the country, the IETF followed stay-at-home orders and set up home offices to continue the work we do.

survey clip art

As we look to the fall, we are exploring options that will enable us to continue to educate and support our ET community, while keeping them safe. So, we need your input.

We have developed a short online survey which will take only one to two minutes to complete. We’ll share the results with you in an upcoming issue of Tremor Gram. Click here to take the survey.  

IETF Awards 2020 Research Grant

Is there a connection between essential tremor and dementia? It remains an open question, one which a new research study aims to answer.

This spring, the IETF awarded a $50,000  research grant to help support the study, “Is There a Relationship Between Essential Tremor and Dementia? Answers from a Longitudinal Cohort Study.” Heading up the study is Dr. Shyamal Mehta, assistant professor of neurology at the Mayo Clinic, in Arizona.

photo of dr shyamal mehta md, mayo clinic

Here is an excerpt from Dr. Mehta’s grant application:

“Dementia is another common neurological condition of varying etiologies – most commonly Alzheimer’s disease, vascular dementia and Lewy body disorders to name a few. A population study of ET demonstrated that more mildly affected, largely untreated ET individuals may be more likely to complain of memory problems and have deficits at testing. In the past, our group has compared the risk of developing dementia in subjects with ET versus controls without tremor in a large, well characterized cohort of individuals involved in a longitudinal aging study, the Arizona Study of Aging and Neurodegenerative Disorders (AZSAND). Based on the size of our cohort at the time, we concluded that ET was not associated with an increased risk of dementia but that a subset of subjects with older age onset/shorter duration tremor may be at higher risk. We would like to better assess and further study this more conclusively given the substantial increase in the size of our ET cohort since our first report, thanks in part to funding from the IETF. As well we propose to better characterize the tremors in patients with dementia related to both Lewy body and non-Lewy body disorders.”

Each year, researchers with an interest in studying the various aspects of essential tremor are encouraged to submit scientific proposals for grant funding from the International Essential Tremor Foundation (IETF). To date, the IETF has provided $900,000 in research grant funding, thanks to the generosity of IETF donors. To contribute to future research grants, make a donation online.

Try These Techniques to Calm Your Tremor

Cover Photo for Dr Michael Braitsch video of calming techniques

2020 has been a year of uncertainty with COVID-19 threatening our health and our economy. The result: increased worry and stress. It’s commonly known that stress can worsen essential tremor symptoms. Stress increases the body’s levels of cortisol and adrenalins. Both of these things can exacerbate tremor.

IETF Executive Director Patrick McCartney reached out to an expert via Zoom in search of some advice to help our ET community manage their stress, and in turn, their tremor. That expert is Dr. Michael Braitsch, a licensed doctor of physical therapy and founder of Tribe Wellness, in Richardson, Texas.  

In this video, Dr. Braitsch demonstrates several coping techniques, from deep breathing to Tai chi moves. So, tune in, take a breath and relax your tremor.  

Categories: Tremor Gram

12 thoughts on “Tremor Gram – June 2020

    1. Our apologies! We recently launched a new website and many links have changed. Let me find that and I will send it your way via email. Sorry for the confusion.

  1. I live in Harare, Zimbabwe.
    Attendance at meetings or groups would not happen, but I’d be happy to set up a local support group and participate as much as possible.

  2. I have had ET for about 30 years, which has grown increasingly worse. I learned about the MRI guided ultrasound procedure and met with a neurosurgeon at UCLA.. He felt that the procedure would alleviate the tremor(on my dominant side.)

    Seeking pre-approval from Anthem-Blue Cross of California, the approval was denied on the basis that the procedure was “investigative and unproven” even though it had been approved by both the FDA and Medicare several years before.

    After having filed three appeals, I was still denied.

    I contacted the Calif. Dept. of Managed Health Care who was able to get the insurance company to finally approve me…after almost six months.

    I would urge anyone with similar circumstances to NOT GIVE UP!

  3. Enjoyed Dr. Mike’s session. It would be nice to have that on a DVD to play anytime and anywhere.

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