Tremor Gram – July 2024

Posted on July 11, 2024

Move-D Stabilizes Tremors in Children and Adults

Inspired to improve the quality of life for children and adults with upper extremity tremors, Innovation Lab and Children’s Hospital of Orange County partnered with the University of California, Irvine to develop Move-D, a mechanical elbow brace.

Move-D ET Virtual Education Event

In our latest Essential Tremor Virtual Education Event, Dr. Sharief Taraman shares the story of Move-D.  He is CEO of Cognoa, a company that provides innovative solutions for child developmental health.

Move-D came about after a young boy named Dylan reached out to the hospital for support in managing his essential tremor, ataxia and cerebral palsy. He wanted a device that would allow him to take a drink without spilling it, and one that would allow him to play with his Legos.

Over the course of a year, Dylan worked with Dr. Taraman, biomedical engineering students and an occupational therapist to help them develop something to meet his needs.   

Hear about this heartfelt story and learn about this device in “Move-D Stabilizes Tremors in Children and Adults.”

Help Us Unlock the Mystery of ET

Essential tremor (ET) is a life-altering and often misunderstood condition that impacts 7 to 10 million people in the U.S. alone. One of the goals of the International Essential Tremor Foundation (IETF) is to encourage and provide funding for research that can lead to better treatments and a cure.

IETF Research Fund

 As of 2024, donations from our ET community have helped us fund more than $1.15 million in research grants to researchers, clinicians and post-doctoral students. July is a time when we work to raise money to continue this valuable program.

Your support will help us build on research discoveries and explore promising paths. Any contribution, no matter the size, will boost ET research and has the potential to make life better for people living with ET.

We invite you to be a part of these exciting advancements in ET research with your gift today. Every penny donated to ET research goes directly into this grant program.

By working together, we can begin Unlocking the Mystery of ET.

Application Deadline Set for 2025 Research Grants

Researchers with an interest in studying the various aspects of essential tremor are encouraged to submit proposals for grant funding from the IETF. Letters of intent for 2025 funding are due November 1, 2024.

Applications should focus on studies achieving one or more of the following goals:

  • A better understanding of the underlying pathophysiology of ET, including independent covalidation of previous findings
  • A better understanding of the etiology of ET
  • Development or further validation of animal models of ET
  • Other approaches furthering the understanding of ET, which in turn would lead to enhanced treatment options for patients

The grant process is open to researchers, clinicians and post-doctoral students in the U.S. and non-U.S. academic or private setting. (Post-doctoral fellows may apply with the designation of an appropriate administrative principal investigator who directs the laboratory where the fellow will conduct the research.)

Download the Request for Applications guidelines to learn more.

The IETF is grateful to the estates of Richard B. Peters, and Lillian and David Courtheoux who provide funding for this program.

Sign Up for a Clinical Trial

If you want to make a difference in the search for better treatments for essential tremor (ET), consider participating in a clinical trial. On the IETF website, we keep an ongoing list of clinical trials recruiting participants.

artwork for clinical trials

Here are some of the most recent ones:

  • The University of Texas Essential Vocal Tremor Treatment Study. Researchers in the Voice Lab at The University of Texas at Austin invite individuals with essential tremor to participate in a study of voice. The goal of this study is to develop a therapy that improves vocal control in speakers with tremor. Participants will complete hearing tests, cognitive tests, and voice recordings while they perform different speaking tasks. Participants will also receive 12 virtual voice therapy sessions. Nasolaryngoscopy will be performed.  Participation requires attending up to two in-person sessions in the UT Voice Lab in Austin, TX. For more information contact the UT Voice Lab, (512) 232-4428, or email voicelab@austin.utexas.edu.
  • Praxis Precision Medicines Essential3 At-Home Phase 3 Research Study in Essential Tremor. The Essential3 study is an at-home research study evaluating an investigational drug, to see if it may improve your ability to complete everyday tasks, such as eating, drinking and dressing. The Essential3 study has been designed so that you may participate from the comfort of your own home. There is no travel or trips to the doctor’s office required. If you would like to learn more about this study and see if you qualify, visit www.essential3study.com.
Categories: Tremor Gram

3 thoughts on “Tremor Gram – July 2024

  1. I would like to participate in the Texas vocal tremor study but I can’t get to Texas. mIs there any online procedure?

    1. Unfortunately, there is not an online process. And they actually just finished filling their slots for participants. I received an email from them today. They said they have plans for more treatment studies so we will share those when they are ready to recruit.

    2. Hi Elissa,
      I have a vocal tremor also, that is my major ET symptom and so annoying.
      Would you like to be a “pen pal” to share ideas and coping measures?
      Carol

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