Tremor Gram – February 2022

Get Ready for National Essential Tremor Awareness Month

Help us “Make ET the Talk of the Town”with our FREE posters!

Image of NETA 2020 Poster

Each March, we host a huge awareness campaign to help achieve greater understanding and acceptance of essential tremor. This year’s theme is “Make ET the Talk of the Town.”

In preparation, we are offering our awareness posters FREE. With the message, “Your Shaking Might Be a Sign of Essential Tremor,” the poster defines ET and gives some overall facts. The posters can be hung in the workplace, local community center, library or other public places. Just complete the online form to receive yours.

We’re also looking for your stories. Share how ET impacts your life to educate others. We’ll share these as a blog posts on our website. Send them to Tammy Dodderidge, IETF Marketing and Communications Manager, tammy@essentialtremor.org.

Watch your mail for a special NETA Month awareness letter and see our NETA lunchbox cooler and soft bound journal. With a donation to the IETF, you can receive one or both of these items. Or go to our ET Awareness website page to learn more.

Steady Your Hands with Readi-Steadi

Talking-Essential-Tremor-Podcast-Logo

Our latest Talking Essential Tremor podcast focuses on the Readi-Steadi Anti-Tremor Orthotic Glove System. IETF Executive Director Patrick McCartney visits with Readi-Steadi creator Krista Madere, licensed occupational therapist. She developed this assistive device to help patients gain control of their hand tremors. Her studies show it provides a 50 percent reduction in tremor.

Click here to listen to “Steady Your Hands with Readi-Steadi.”

The Talking Essential Tremor podcast series includes more than a dozen audio recordings focusing on topics such as assistive devices, investigational drugs for ET, surgical options and personal stories of hope. Listen to them on the IETF website.  

Stay Up-to-Date on All Things ET with Tremor Talk Magazine

TremorTalkJan2022Cover

The IETF publishes the 32-page full-color Tremor Talk magazine three times a year as a resource for the essential tremor (ET) community. It includes updates in the areas of ET research, awareness, education and support. If you are an annual donor, you automatically are added to our mailing list.

Our latest issue features an overview of research into how many people are impacted by ET, written by Dr. Elan Louis, with the University of Texas Southwestern Medical Center. Click here to see a preview.

Categories: Tremor Gram

18 thoughts on “Tremor Gram – February 2022

  1. What medication control’s ET the best? I am on Propanalol for years now…the best I have taken for no bad side effects. I live in Ireland 🇮🇪.

    1. Hi Louise,
      Good to come across another Irish person with ET – sorry you know what I mean, but I haven’t met anyone else in the 12 years that I’ve had it.
      I’m on Topamax, great at first but not controlling it now so have been prescribed Clonazepam which I have yet to take.

    2. I was on Propranalol for over 12 years but finally taken off the drug because it progressively reduced my resting heart rate. When that rate got down into the 40s I stopped. Since then, my tremor has gotten progressively worse. Other drugs were not as effective and I had side effects, so stopped them. I am putting up with a deteriorating shake so far because I can deal with that better than other side effects.

      1. I was on Propranalol for over a decade and had to go off it because it increased the symptoms of Raynaulds Syndrome. I’m on BusPHrone and have been for about 4 years, but the shaking seems to have gotten worse as I age.

    3. Hi I’m in Florida I take propanol which is also inderal also take klonopin they help get me day to day but I also have my head and hands well take care everybody we do the best we can all of us

    1. I heard it’s only for hands and doesn’t have any guarantees but it’s a personal choice

  2. I ve had the implant and have a side effect of virtually losing my voice is this normal.?

  3. I’ve had the brain implant device but a side effect I’ve had is losing my ability to speak. Is this normal?

    1. Please check in with your neurosurgeon with any questions or issues regarding your surgery.

  4. Hi Louise,
    Good to come across another Irish person with ET – sorry you know what I mean, but I haven’t met anyone else in the 12 years that I’ve had it.
    I’m on Topamax, great at first but not controlling it now so have been prescribed Clonazepam which I have yet to take.

    1. Hi I took topomax it really helped my tremors But be careful it gave me kidney stones and was in a fog stick with the clozanapam I take it for years but I take the brand klonopin topomax was great also for weight loss but I wouldn’t reccomend it bad side effects

    2. Hi I took topomax it really helped my tremors But be careful it gave me kidney stones and was in a fog stick with the clozanapam I take it for years but I take the brand klonopin topomax was great also for weight loss but I wouldn’t reccomend it bad side effects

  5. I HAVE BEEN ON TOPAMAX (TOPAMIRATE) FOR SEVERAL YEARS AND DEALING WITH SIDE EFFECTS. i RECENTLY WAS ON PRIMADONE, ALSO BUT HAD TO STOP DUE TO SOME VERY UNPLEASANT SIDE EFFECTS. DOING ALRIGHT.

  6. I am taking Propanolol, Primidone, and have had the DBS surgery (in 2013 and 2015) on both sides of my brain. I’ve had no problems with my voice. It became clear with no tremors, which my surgeon said was a 50/50 chance.

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