ET Conference Sessions are Now Available on YouTube
If you weren’t able to attend our Essential Tremor (ET) Virtual Education Conference in November, you can still benefit from it. We recorded our speaker sessions and have them available for viewing on YouTube.
Here are the session topics and links:
- ET Research Update by Dr. Holly Shill, director, Lonnie and Muhammad Ali Movement Disorder Center and chair of the IETF Medical Advisory Board.
- Diagnostic and Treatment Options for ET by Dr. Stuart Isaacson, director, Parkinson’s Disease and Movement Disorders Center of Boca Raton, FL, and member of the IETF Medical Advisory Board.
- Coping Techniques for ET by Kelli Reiling Ott, OTD, OTR/L, MSC, program manager, evidence-based practice at Children’s Mercy Hospital, Kansas City.
This was the IETF’s first ET Virtual Education Conference, offered free to the ET community. More than 1,800 people registered to attend.
Consider a Year-End Gift to the IETF
As we approach the end of the year, we are looking back on our many achievements. Because of your involvement and support, we have:
- Continued our National Essential Tremor Awareness Month initiative to shine a spotlight on ET and its impact globally.
- Hosted our first-ever ET Virtual Education Conference, bringing together medical experts and people living with ET to learn, connect and share.
- Offered community and understanding through more than 70 support groups around the world.
- Designated our first $150,000 research grant since revamping our research program in 2021.
Would you please consider a year-end contribution to help us continue this meaningful work? Your support reaches far and wide. Whatever challenge — or goal — stands before a person living with ET, the IETF can provide resources to help thanks to your support.
A better future is possible for everyone with ET. Thank you for doing your part to help make this a reality. Donate before the end of the year.
Listen to Our Latest Podcast
Research shows that about one of every 100 people on the planet has essential tremor (ET). The prevalence of ET is as high as eight percent in people over the age of 65.
These are some of the results published in the research study, “How Common is Essential Tremor? Update on the Worldwide Prevalence of Essential Tremor.” In our latest Talking Essential Tremor podcast, “How Common is Essential Tremor?,” co-author of the study, Dr. Elan Louis, shares more statistics. For example, ET equally affects men and women.
Dr. Louis is professor and chair of the department of neurology at the University of Texas Southwestern Medical Center, Dallas. He first published a paper on the prevalence of ET about 10 years ago, and this more recent study is an update, with more data included.
Dr. Louis is considered the world’s leading scholar in essential tremor. He is also a member of the IETF Medical Advisory Board.
Clinical Trials Need You!
If you want to make a difference in the search for better treatments for essential tremor, consider participating in a clinical trial. On our website, we keep an ongoing list of clinical trials recruiting participants. Here are some of the most recent ones:
- Jazz Pharmaceuticals’ EveresT Study is a research study testing the safety and effectiveness of an investigational medication that may help decrease tremor severity for people diagnosed with essential tremor (ET). To learn more and sign up for the study, please visit the study website here.
- The KINETIC 2 TRIAL is evaluating the safety and efficacy of three different doses of an investigational drug compared to a placebo on reducing tremors in adults diagnosed with essential tremor. Participation lasts approximately 19 weeks. Visit the study website at KINETIC2ETtrial.com to learn more.
- Researchers in the Voice Lab at The University of Texas at Austin invite individuals with essential tremor to participate in a study of voice. The goals of the study are to understand how speakers control their voice and to develop therapy that improves vocal control. For more information contact the UT Voice Lab, (512) 232-4428, or email voicelab@austin.utexas.edu.
Very informative. I will listen to the podcast and research the vocal lab in Texas.