Tremor Gram – December 2020

IETF: Past, Present and Future

Who is the IETF and what do we do? Tune into our newest ET Virtual Education Event, “IETF: Past, Present and Future” to gain a more thorough understanding.

IETF Executive Director Patrick McCartney narrates this video talking about the 30-year history of the IETF and the components our mission. He touches on research initiatives, support services, scholarships and communication. This overview is similar to the presentation provided at the IETF’s in-person ET Education Events (which have not been possible for the past year due to the COVID-19 pandemic.)

Take a look. You’re guaranteed to learn something new about the IETF.

Together We Can Make Life Better for People with ET

As we finish up the year, we want to say thank you to our essential tremor community for all your involvement in and support of the IETF and our mission. We are proud of the work we do, but know it would not be possible without you.

As a nonprofit organization, we rely on donations to enable us to connect more people to invaluable support programs and create greater understanding through awareness and education.

We hope you’ll consider closing out the year with a year-end donation to the IETF so we can continue our work in 2021.

As a recipient of this e-newsletter, your life has been touched by ET in some fashion, whether you experience it yourself or know someone who does. Because of your generosity, we are able to help more people with ET. Together, we can continue to make life better for people with ET.

Thank you, and happy holidays!

An Interview with Scholarship Recipient Madison Young


She’s a five-time IETF scholarship recipient and she is graduating this year with a degree in physical therapy. Listen to our latest Talking Essential Tremor podcast with Madison Young.

Madison was diagnosed with essential tremor when she was 14, and didn’t really understand what it meant at the time. She noticed she shook regularly, and that other people didn’t. In the podcast, she says she remembers asking her mom if she was going to die from this condition. She also talks about the stigma of living with ET and expresses her appreciation for the scholarship support she has received from the IETF.

“It means so much to me on a daily basis to feel like ‘Yes, these people do believe in me!’” Madison said. “I love having the support of the community behind me.”

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