Help Us Raise the Curtain on ET Research
One of the most important parts of the IETF’s mission is our work around research. We know research is what allows us to move forward with better treatments and management techniques for essential tremor.
Each year, we award grants to researchers who submit proposals for projects that address the nosology, etiology, pathogenesis, treatment and other topics relevant to essential tremor. To date, we have awarded $900,000 to research studies.
But none is this is possible without your help. We need your support for this important funding.
In July, we mailed a letter and donation card to our essential tremor community asking for support for our 2021 research grants. We appreciate all those who have responded. If you did not receive a letter, you can make a donation online. ALL donation dollars received go directly to these grants.
We are excited about the new possibilities for essential tremor research, and we will continue to explore new ways to encourage and support it.
Virtual Education Events
Thank you to the more than 1,800 people who responded to our “ET Education Survey” last month. We developed the survey to solicit feedback on the direction of our ET education events in light of the COVID-19 pandemic. (You can read an overview of the survey results online.)
Based on your feedback, we have moved forward with creating ET Virtual Education Events. Our first two-part event is available now. It focuses on Diagnosis & Treatment Options for Essential Tremor.
In Part I, Dr. Avram Fraint, neurologist with Northwestern Medicine, Chicago, discusses the pathogenesis of essential tremor, genetic factors, diagnostic techniques and non-surgical treatment.
Part II focuses on surgical options for ET, presented by Dr. Leonard Verhagen, professor of the Department of Neurological Sciences at Rush University Medical Center in Chicago.
Both videos are packed with valuable information. We are grateful to these physicians for the time they took to share their presentations, and for their dedication to the ET community.
Research Studies Looking for Participants
The IETF is proud to partner with Dr. Elan Louis and his colleagues at UT Southwestern Medical Center to promote groundbreaking research happening in the area of essential tremor. Participants are now being recruited for several research studies. They include:
Study of Cognition in Essential Tremor. This study is tracking cognitive changes in individuals with ET.
Risk Factors Underlying Essential Tremor. This study is tracking the environmental causes associated with movement disorders such as ET and Parkinson’s disease (PD). Participants must NOT have a medical history of Parkinson’s disease or dystonia. This NIH-funded study is recruiting participants in the Dallas-Fort Worth area.
Risk Factors Underlying Essential Tremor (for those with a history of PD). This research study is tracking the environmental causes associated with movement disorders such as ET and Parkinson’s disease (PD). This NIH-funded study is recruiting participants in the Dallas-Fort Worth area.
More details on these and other research studies are available on the IETF website.