IRVINE, Calif., March 15, 2022 /PRNewswire/ — Allevion Therapeutics announced today that the Medical and Scientific Advisory Board (SAB) is expanding to include three new members — Rajesh Pahwa, M.D., Stuart H. Isaacson, M.D., and Patrick McCartney. The expansion of the board coincides with the successful completion of an initial pilot clinical study.
Irem Sara’s Story My name is Sara. I’m 21 years old and I was diagnosed to essential tremor two years ago. The first time that I heard this I felt exhausted. The first medication I started caused complications with my heart. After I took my medicine, I was feeling like I was fighting with a […]
Jennifer’s Story “You have essential tremor (ET). It’s a neurological movement disorder that has no cure, and is progressive.” This is what my doctor told me. How does one process that at 34 years old or at any age? The fact is it may take time. It has taken me two long months and hours […]
Judy’s Story Sometime in the 1970s my sister asked me, “Why is your arm twitching?” Since I had always seen her as a bit of an alarmist, I shrugged it off and forgot about it. Whether that was a precursor to my essential tremor (ET) I would never know as I was not diagnosed for […]
Andrea’s Story My hands started to shake when I was in high school, earning me very colorful nicknames like “palsy” and “coke head.” I tried to laugh it off, making jokes and trying so hard to ignore the stares. As my disease progressed, small things became more difficult. But it wasn’t until I had kids […]
By Sue from Australia, I have had essential tremor (ET) as far back as I can remember. I don’t suppose I could miss it really as I have inherited it from both parents. My other five siblings have fine slight tremors, but my ET has been a very different journey. At 16 years old I was […]
Sebnem’s Story My struggle with essential tremor (ET) started in childhood. My hands have been trembling since I was little. It was initially thought to be a social phobia. I was diagnosed while I was in college and I started taking medication. Life was tough until I found the right medication. Sometimes it still challenges […]
Let’s Make ET the Talk of the Town, New Wrist Device Helps Calm Tremor, Take Our Survey to Help Us Plan Future Education Events.
Learn about Allevx, a neuromodulation wrist device for treating essential tremor, developed by Allevion Therapeutics. IETF Executive Director Patrick McCartney talks with Allevion’s CEO and Chairman Shawn Moaddeb and Board Certified Neurologist Dr. Neal Hermanowicz.
Donna’s Story I started seeing signs of essential tremor at the age of 44. It started in my hands. I would have a day with shaky hands and then the next it was gone. I could go a month easily without shaky hands before it happened again. I didn’t think too much about it, though I was curious. I figured if […]