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home » about us
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About Us
The IETF
 The IETF, an international 501(c)(3) non-profit membership organization, was founded in 1988 and is guided by a board of directors, a medical advisory board, and staff. The organization's membership consists of patients, physicians, educators, health care workers, parents, relatives, friends and volunteers.
The mission of the IETF is:
To provide global educational information, services and support to those affected by essential tremor (ET), and to health care providers, while promoting and funding ET research.
Services provided by the IETF include mailing or emailing a free information packet about ET upon request, maintaining an up-to-date listing of physicians specializing in ET, and assisting in forming and maintaining ET support groups. In addition, the IETF conducts several free educational events in cities across the United States every year, and an annual awareness campaign that runs in conjunction with the organization's largest fundraising activity, Tulips for Tremorsm.
Every year, the IETF also funds basic research into the cause(s) of ET. Small grants are awarded to established scientists whose primary interest is tremor disorders. The IETF funds this program in the hope that these scientists will collect sufficient published data to help them qualify for future federal funding that will lead to better treatments and a cure.
IETF members receive two copies a year of the member magazine, Tremor Talk and three copies of the research newsletter, The Scoop on Tremor. Articles in both publications are written for the non-medically trained person and discuss recent advances in research, coping techniques and topics of general interest to those with ET. Medical and research articles are written by physicians and researchers who work with patients with ET and/or study ET in laboratories.
Join the IETF!
Board of Directors
- Kelly E. Lyons, Ph.D., President
- Peter LeWitt, M.D., Vice President
- Russ Rosen, M.S.W., Secretary
- Russ Rosen, M.S.W., Treasurer
- Shari Finsilver, Past President
- L. William Teweles, Past President
- State Senator Terry Link, Trustee
- Celeste Null, M.S., Trustee
- W. Doug Ward, Ph.D., Trustee
Medical Advisory Board
- Roy A. E. Bakay, M.D.
- Rodger Elble, M.D.
- Leslie J. Findley, T.D., M.D., FRCP
- Mark Hallett, M.D., Chair
- Peter Hedera, M.D.
- Arif Herekar, M.D.
- Joseph Jankovic, M.D.
- Amos D. Korczyn, M.D., M.Sc.
- Anthony E. Lang, M.D., FRCP(C)
- Peter LeWitt, M.D.
- Elan D. Louis, M.D.
- William Ondo, M.D.
- A. H. Rajput, M.D., B.S., FRCP(C)
- Sara Salles, D.O.
- Kapil Sethi, M.D.
- Mark Stacy, M.D.
- Claudia Testa, M.D., Ph.D.
- Roy L. Watts, M.D.
Staff
- Catherine S. Rice, B.B.A., M.N.M., Executive Director
- Karen Walsh, Administrator of Patient Programs, Europe
Annual Reports
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Research Studies
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Recruiting persons with undiagnosed tremor
Click here for details.
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Trace R&D Center, University of Wisconsin-Madison
Call 608-263-1156 or email for details. More »
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Hand Held Electronics Usability
Call and mention "Wand Study" Call 404-321-6111 exts 4048 or 2561. for details. More »
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The Department of Neurology at the University of Miami (Miami, FL)
Brain Mechanisms of ET Call 305-243-5827. for details. More »
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Pregabalin study U. of South Florida, Tampa
ET patients in Tampa area Call 813-974-5909 or email for details. More »
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ET Community Events
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August 1 - Fayetteville, AR Community Awareness Event
E-mail us for details. More »
Register Now
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August 21 - Augusta, GA Community Awareness Event
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September 12 - Detroit, MI Community Awareness Event
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October 10 - Cape Girardeau, MO Community Awareness Event
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October 10 - Denver, CO Community Awareness Event
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October 24 - Saint Louis, MO Community Awareness Event
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Portland, OR Community Awareness Event
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San Francisco Bay Area Community Awareness Event
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Support Groups
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June 29 - Hilton Head, SC
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July 1 - Daytona Beach, FL
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July 1 - Landsdowne, VA
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July 2 - Silver Spring, MD
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July 5 - Columbus, OH
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July 8 - Prince Frederick, MD
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July 9 - Hickory/Taylorsville, NC Evening
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July 9 - Charlottesville, VA
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July 10 - Lexington, VA
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July 11 - Saginaw, MI
Call 989-799-5413 for details. More »
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July 11 - Northern Colorado
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July 11 - Saint Louis City
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July 12 - Cincinnati / Dayton, OH
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July 14 - Roswell, GA
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July 14 - Taylorsville/Hickory, NC Evening SG
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July 15 - Roanoke VA
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July 17 - Roanoke VA
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July 18 - San Ramon, CA
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July 18 - Albuquerque, NM
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July 20 - Lynchburg, VA
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July 21 - Richmond, VA Evening
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July 21 - Richmond VA DAY
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July 21 - Manchester, MO
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July 23 - Wilmington, NC
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July 25 - Chesterfield/Saint Louis West County, MO
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July 29 - Bluffton, SC
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Aug 8 - Milwaukee, WI
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Somers, NY
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Reston, VA
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Sept 3 - Asheville, NC
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Sept 21 - Aiken, SC
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Watertown, NY
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Palm Springs, CA
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East Texas
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