About the IETF
Founded in 1988 as a 501(c)3 non-profit membership organization, the International Essential Tremor Foundation (IETF) is guided by an executive board of directors, a medical advisory board and an executive director with a staff of three. The organization consists of patients, physicians, educators, health care workers, parents, relatives, friends and volunteers.
The IETF funds research to find the cause of essential tremor (ET) that leads to treatments and a cure, increases awareness, and provides educational materials, tools, and support for healthcare providers, the public, and those affected by ET.
Board of Directors
The Board of Directors is the governing body of the IETF. Current members include:
Kelly Lyons, PhD – President
Peter LeWitt, MD, Vice-President
Russ Rosen, MSW, Secretary/Treasurer
Edward M. Block, PhD, Secretary
Shari Finsilver, Past President
Medical Advisory Board
The IETF Medical Advisory Board is comprised of physicians and researchers who specialize in essential tremor and other movement disorders. They advise the organization and review medical materials.
Each semester, the IETF will award up to four $500 scholarships to qualified post-high school students of all ages, to lessen the burden of higher education. The scholarship can be used for supplies, books or tuition at licensed, accredited institutions of higher education (including trade schools) and are paid directly to the educational institution.
Spirit of Hope Award
Each year, the Shari Finsilver Spirit of Hope Award is presented to the person that embodies Shari’s spirit and commitment to combating ET, supporting the IETF, and spreading hope to those with ET and their loved ones.
2012 – Dr. Paul Donohue
2011 – Shari Finsilver
These reports chart our progress toward the mission of the Foundation. The IETF fiscal year runs from April 1 through March 31.
We are proud to be a member, participant and/or partner of the following organizations:
American Brain Coalition | CIBR | Coalition for Clinical Trials Awareness | Coalition for Health Funding | Community Health Charities | Cures Acceleration Network (CAN) | Genetics Alliance | Midwest Neurological Coalition | National Institute of Neurological Disorders and Stroke | National Council of Nonprofits | One Mind