Hope.
IETF empowers individuals to regain control of their lives, by providing educational information, treatment options and coping skills.
 
Awareness.
IETF actively advocates for greater ET awareness and education at every level—from health care providers to government officials.
 
Research.
IEFT funds scientific research to find more effective treatments and a cure for ET.
 
Support.
IETF has support groups across the globe to provide inspiration and fellowship among those living with ET.
 
 
A single voice is seldom heard, but a thousand voices shake the world.
Coping Tips

Click here to print a copy of this page.

ET is a life-altering condition that makes everyday living a test of ingenuity, Perseverance and self-esteem. Daily activities such as writing a letter, dressing and eating cause frustration that can lead to stress with temporarily worsening tremor. In order to assist people who have ET in continuing to live full, meaningful lives, the IETF offers the following coping tips.

This information is not intended to replace your current medical therapy. Discuss your difficulties with your physician or other healthcare professional in order to help develop a well-rounded treatment plan that is right for you.

General suggestions

• Learn to use your tremor-free hand for as many activities as possible, including writing.

• Hold your chin toward your chest, or turn your head to the side to control head tremor.

• Use your tremor-free hand to steady your tremoring hand, and whenever possible use
two hands.

• Use travel mugs with lids. When on the go, use lids for purchased beverages whenever
possible.

• Carry straws with you. You can find sturdy, thickplastic straws in many houseware
sections of stores if thin plastic straws are too flimsy.

• Avoid caffeine, mahuang, ephedra and other over-the-counter medications and herbs containing ingredients that increase your heart rate and can increase tremor temporarily.

• Keep your elbows close to your body when performing tasks as a way to help control hand tremor.

• Carry a small tape recorder with you to record notes.

• Carry and use larger handled, weighted pens and eating utensils.

• Use a signature stamp when possible for signing your name.

• Carry a strip of self-adhesive address labels to give to people who ask for your name and address.

• Fill out deposit and withdrawal slips at home before going to the bank.

• Consider using on-line banking to pay your monthly bills.

• If you write checks, do them all on a “good” tremor day.

• Consider using credit or debit cards instead of writing checks.

Dental visits

• Ask for adrenaline-free anethesia shots.

• Notify your dentist of all the medications you are taking. (Head tremor only)

• Request that your dentist stop periodically so you can massage and rest your jaw and your head.

• Ask your dentist whether a bite block will help steady your jaw during dental procedures.

• Talk with your dentist about having a person in addition to the dental assistant help with your procedure. The third person can gently hold your head to help control tremor.

Eating in restaurants

• Request that your meat be cut in the kitchen before being served.

• Consider ordering finger foods to eliminate the need for utensils.

• Ask that your soup be served in a mug.

• Request that drinking glass or mug be filled only half full.

• Ask for a straw.

• Avoid buffets or have someone assist you when going through the line.
 

Eating, drinking, food preparation

• Use heavier glasses and mugs instead of light-weight cups. Soup mugs are also a good choice for drinking.

• When holding a mug or small glass, place your thumb along the rim and place your fingers across the bottom.

• Fill cups, mugs and glasses half-full.

• Consider using dishes that have vertical sides or buy rubber bumper guards from a medical supply store to place around the edges of your plates so you can more easily scoop your food.

Stress Management

As in any chronic health condition, stress control is a very important aspect of disease management. Below are a list of websites with information on methods of controlling stress. If one method does not suit you, try another and another until you find one that you are comfortable with and that provides stress relief with practice.

Biofeedback Certification Institute of America - For some individuals, stress can temporarily cause an increase in tremor. Some individuals with tremor have found that biofeedback helps reduce stress. For a biofeedback specialist near you, visit this site and search by area. It is advisable that you call the office to find out if the biofeedback specialist has experience treating patients with tremor before you schedule your appointment.

The American Holistic Medical Association - defines and explains holistic practicies in medicine. Has searchable database of physicians and alternative therapies practitioners.

The Center for Contemplative Mind in Society - provides information on many Contemplative Practices such as yoga, meditation, etc and links to related websites.

Personal Care

• Use an electric razor when shaving.

• Have a manicurist care for your nails.

• Have a cosmetologist wax or pluck your eyebrows.

• Try using disposable floss holders when flossing your teeth.

• Hire a seamstress to do your mending, or find a volunteer to sew on buttons, thread needles and pin fabrics.

• Use an electric toothbrush or a child’s toothbrush for better control when brushing your teeth.

 
Applying makeup and putting on jewelry

• Apply mascara by resting your elbows on the countertop. Put the wand in one hand and
use the other hand to keep the wand steady.

• Apply eyebrow pencil, mascara, eyeliner or lipstick by resting your finger or the palm of
your hand on your face to steady your hand.

• Put on earrings by resting your elbows on a table. If you have head tremor, place your chin
on an upended facial tissue box to steady your head.
 

Writing

• Print rather than write script.

• Write in small letters — it’s easier than writing in large letters. Rest your forearm on a
table while writing.

• Hold the pen between your index and middle finger.

• Place writing paper on a soft surface such as a newspaper to help control shaking hand
movements.



Technology

• Use a telephone with large buttons. Avoid phones with speed dial and redial
buttons too close to the number buttons.

• Use a speakerphone, a headset or Bluetooth® device when using phones.

• Keep a small tape recorder next to the phone so you can record information
when talking on the phone.

• Ask your security alarm representative to give you a remote to turn your system
on and off.

• Use voice-activated dialing if available on your cell phone.

• Set your computer to omit double strikes on the key board and doubleclicks on
the mouse. Go to your computer’s Control Panel and click on Accessibility
Options to set these options.

• Go to a store selling a number of different types of computer mouses, try them out, and choose the one that works best for you.

• Check into speech-recognition software. Some computers are pre-loaded with this.

• When choosing a digital camera, pick one with image stabilization technology.
 

Airport security

Getting through airport security can be especially difficult for people with ET. It is a frustrating, intimidating experience.That’s why it is important to be prepared.

• Give yourself plenty of time to arrive well before a flight so that you do not have
to rush through security.

• When dressing for air travel, wear slip-on shoes that are easily removed to put
into checkpoint trays and easily put back on afterwards. Take your belt off
before going through security or don’t wear one.

• Place everything you usually carry in your pockets, such as coins, keys and
cell phone, into a plastic bag in advance so it is easier to place in the security
tray.

• Have your ID and other travel documents together and in your hand before
entering security.


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