International Essential Tremor Foundation


	Of 20-plus different kinds of tremor, essential tremor (ET) is the most common. Also known as familial tremor, benign essential tremor or hereditary tremor, ET is a neurological condition that is often confused with Parkinson’s disease and dystonia. Because of misguided beliefs and a lack of awareness, many people with this condition never seek medical care though most would benefit from treatment. The International Essential Tremor Foundation (IETF) dedicates this site to the millions of people worldwide affected by ET.

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NEW and in Limited Supply!!!
IETF Anniversary Edition of Essays: 1988 to 2008
Be the first to get your specially bound collection of essays and articles, written by ET experts.
More...

IETF has awarded $336,000
in funding to researchers working to find
the cause for ET.
read more

Listen to the talk radio show interview featuring IETF Executive Director, Catherine Rice!

Tulips for Tremor 2008
Does it seem like no one, including your doctor, knows about ET? Do something about it! Make a purchase donation of quality Dutch tulip bulbs during the second annual Tulips for Tremor fundraiser to support the on-going campaign to spread the message about ET and to fund research into its cause(s). On-line campaign will begin Monday, June 16, 2008.
See the selection of tulip bulbs available, or
print out an order form to mail to the IETF.

IETF launches new WebStore
For Shaking Up Awareness™ about ET and Tulips for Tremor™ apparel, jewelry, caps and tote bags, and books, bracelets and computer mice check out the IETF’s new Webstore.
shop with IETF

IETF Announces new Community Ambassadors.

IETF Community Ambassadors raise awareness
Whether starting a support group, providing physicians with IETF literature, or planning an ET awareness event, IETF Community Ambassadors work the mission of the IETF.
meet the ambassadors

Help raise money for ET research and spread the word about ET by wearing an ET Awareness Bracelet
These attractive green/blue “Shaking Up Awareness About ET” bracelet are available for purchase by members and non-members, in increments of five, with proceeds going to ET research.
membership | purchase

Click to request an introductory packet now.

Get a Free Information Packet
Information and understanding are the start to accepting essential tremor as part of your life. The IETF works to make current and up-to-date information available to you any time, day or night.
request one

Essential Tremor: The Facts
By Mark Plumb and Peter Bain, a geneticist and a leading movement disorders specialist who has ET. Order your copy today!
buy now | print order form | read more

Device Gives Computer Access to Hand Tremor Sufferers
IBM's Assistive Mouse Adapter enables people with ET of the hands to have completely normal use of the personal computer. The device works with any operating system and requires no additional software.
order from IETF | read more

"I Can’t Stop Shaking: More than 10 Million People Suffer with Essential Tremor." Order Now!

I Can’t Stop Shaking
Finally! A book about essential tremor written by a person who has essential tremor. I Can’t Stop Shaking by Sandy Kamen Wisniewski is now available. Order your copy today!
buy now | print order form | read more

Assistance Programs Provide No-cost or Low-cost Prescriptions
Patient assistance programs run by pharmaceutical companies provide free or near-free medications for persons in need of financial assistance.
read more

Medtronic Launches New Web Site
Medtronic recently launched a new web site to help meet the needs of the essential tremor community, www.NewHopeforEssentialTremor.com. The site provides useful information, a physician finder, and provides access to patient advisors and other patients.
visit their site (off-site link)

»	Physician Directory
»	Media Kit
»	Annual Report (944K pdf)

»	Support Groups
»	Brain Banks
»	Publications

»	Medications
»	Frequently Asked Questions
»	Email List Signup

GuideStar is the on-line standard for nonprofit accountability. Check out our listing here.

Community Health Charities of Kansas and Missouri, Inc., raises funds on behalf of its member charities for medical research, public education and patient support services through workplace payroll deduction campaigns.

For every dollar you spend on purchases at Amazon.com, when you click on the link here, the IETF receives a portion of the money as a charitable contribution.

We are a proud member of the Non Profit Congress. Many Missions, One Voice.

» Event Registration

Research Studies
»		Do you have an undiagnosed tremor? Now Recruiting for a Diagnostic Clinical Study - Click here for details. More »

»		Now Recruiting for Research Study QUEST Research Institute Call 888-QUEST-24 or click here for details. More »

»		Now Recruiting for NIH 1-Octanol Study 20 volunteers needed! Click here for details. More »

»		Trace R&D Center, University of Wisconsin-Madison Research Participants Wanted Call 608-263-1156 or email for details. More »

ET Community Events
»		Sept 20 - Nashville, TN ET Community Awareness & Education Event Learning About Essential Tremor: Diagnosis and Treatment Options Call 888-387-3667 or email for details. More » Register Now

Support Groups
»		Sept 4 - Asheville NC Area ET Suppot Group First Thursday of Month Call 828-687-2356 or email for details. More »

»		Sept 4 - Silver Spring, MD ET Support Group SG Meeting at Leisure World Call 301-384-1139 or email for details. More »

»		Sept 5 - Saginaw, MI Support Group The Essential Tremor Support Group of Northeastern Michigan Call 989-799-5413 or email for details. More »

»		September 5 - Lexington, VA ET Support Group Kendal of Lexington Call 540-463-7269 or email for details. More »

»		Sept 6 - Morgantown WV ET Support Group Guest Speaker - Paula Briggs, Exercise Physiologist Call 304-292-5257 or email for details. More »

»		Sept 8 - Baltimore Area ET Support Group Call 410-303-7660 or email for details. More »

»		Sept 9 - Stanford CA ET Support Group Standford Hospital, 6:30 p.m. Call 650-328-2998 or email for details. More »

»		Sept 10 - NEW Middleton WI Support Group Middleton Senior Center Call 608-662-9882 or email for details. More »

»		Sept 10- Lynchburg ET Support Group DAY Meeting Group Call 434-525-4160 or email for details. More »

»		Sept 10 - Prince Frederick, MD ET Support Group Chesapeake Beach, MD Daytime SG Call 410-535-3509 or email for details. More »

»		Sept 13 - Northern Colorado ET Support Group DBS mentors speak on thier experiences. Call 970-586-6931 or email for details. More »

»		Sept 14 - Cincinnati / Dayton ET Support Group Call 937-433-0153 or email for details. More »

»		Sept 15 - Watertown, NY ET Support NEW SG - Samaritan Medical Center Call 315-232-2373 or email for details. More »

»		Sept 15 - Aiken, SC ET Support Group Call 803-641-0393 or email for details. More »

»		Sept 16 - Lynchburg ET Support Group Evening Meeting Group Call 434-525-6086 or email for details. More »

»		Sept 18 - Roanoke VA ET Support Group Evening Group Meeting Call 540-721-2087 or email for details. More »

»		Sept 18 - Wichita, KS Area ET Support Group Now Meeting at the Wesley Rehabiliation Hospital Call 316-260-7958 or email for details. More »

»		Sept 19 - Roanoke VA ET Support Group Daytime Group Meeting Call 540-721-2087 or email for details. More »

»		Sept 20 - San Ramon ET Support Group San Ramon Regional Medical Center Call 925-487-5706 or email for details. More »

»		Sept 20 - Albuquerque ET Support Group Call 505-345-3003 or email for details. More »

»		Sept 20 - Los Angeles ET Support Group VA Medical Center Call 310-276-6875 or email for details. More »

»		Sept 22 - Chesapeake Beach, MD ET Support Group NEW Evening SG - new day and time! Call 410-535-3509 or email for details. More »

»		Sept 24 - Landsdowne, VA ET Support Group NEW Leisure World of VA ET Support Group Call 703-609-6614 or email for details. More »

»		Sept 25 - Wilmington NC Support Group Call 910-452-1634 or email for details. More »

»		Sept 30 - Richmond VA ET Support Group Meeting Call 804-556-2345 or email for details. More »

»		Oct 7 - Roswell, GA ET Support Group Call 404-593-3668 or email for details. More »

»		Oct 8 - Tustin CA ET Support Group Drs. Christopher Duma and Janice Chance presenters Call 714-838-3153 or email for details. More »

»		Nov 15 - Los Angeles ET Support Group VA Medical Center Call 310-276-6875 or email for details. More »

»		Nov 22 - Atlanta ET Support Group Call 404-728-6300 or email for details. More »

»		November 22 - Atlanta ET Support Group Call 404-728-6300 or email for details. More »

»		Cedar Rapids, IA ET Support Group Call 319-377-5931 or email for details. More »

»		Leesburg, FL ET Support Group NEW Support Group Call 352-787-8398 or email for details. More »

Click here for our entire calendar.